Blog Posts, Past Autoimmune Experience

May is Lupus Awareness Month

RawThoughtsHealing

Happy Lupus Awareness Month!

Before I was diagnosed, I had never even heard of Lupus before so I try not to get frustrated when other people have no idea what it is. (It’s hard but I make the conscious effort to leave space for those who are oblivious to such illnesses)

If you suffer from any form Lupus, I want you to know that you’re not alone and you’re appreciated! Without this great community of autoimmune survivors, I feel like my life would be a lot more stressful. But meeting people through social media and knowing that I’m not alone in this fight really gives me the inspiration to keep fighting every day!

Lupus is a hard illness to understand and an even harder illness to get rid of. One day soon my blood work will show that I’m healthy and my body will not show signs of being sick. That day is coming not only for me, but for you too. You just have to believe it to be true ✨

Hope you all have a great month! Have your voices heard, keep fighting, and most importantly, demand your health back.

Xoxo,

Hailey

32 thoughts on “May is Lupus Awareness Month”

      1. I was told my Lupus is as suppressed as much as it can be. Not quite full remission because I still have certain symptoms. But it’s nice being able to be weaned off medicines.

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      4. Sorry I must’ve missed this comment! But I have systemic lupus, and so far nothing internal has been affected much. I mainly have joint pain and muscle tenderness and I used to have the butterfly rash but that’s under control now. Again, I’m sorry I took so long to answer this!

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      5. Oh you’re fine it happens to all of us 🙂 and well that’s fortunate you don’t have any major issues. I started getting the rash last summer when I was out in the sun. So now I wear sunscreen when I’m going out.

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      6. Yeah I have 100spf all natural sunscreen. Make sure you don’t use a popular name brand one because the chemicals aren’t good for your body to absorb. I also wear hats whenever I’m I the sun and I always have a long sleeve cardigan or something to cover my arms

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  3. I don’t have lupus or any serious illness yet I follow your blog for several reasons. I mainly enjoy your inspiring and optimistic outlook. Today I had a rough day. I read your post and feel much better.

    You also take me out of myself because I truly want you to overcome this illness. I know you will. All the same, I still send positive energy to you, through prayer in my case.

    Another reason I follow is to enjoy your progress. Though you might experience an occasional setback I know you will always come back strong. That to me is a form of progress. It is growth of character and strength. We all have setbacks in life and it’s how we come back that matters, not the setback. You just keep getting stronger.

    When you overcome this illness you will have learned and come to understand so many things becoming so strong that you will be able to face any obstacle in life and accomplish great things. Truth is, you accomplish great things every day right now.

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    1. Thank you so much for your kind words. It means the world to me to have impacted another person. I hope my posts continue to inspire you and I can’t wait until that one day when I write a post broadcasting that I am illness free. It is comments like this and people like you that keep me writing and expressing my true feelings. Sending love your way💕😊

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  5. Thank you for sharing this information about Lupus. I know very little about Lupus so I appreciate you giving more clarification. I was diagnosed with Multiple Sclerosis almost 18 years ago so I understand what it is like living with a chronic illness, it is not any fun! I am really looking forward to more of your incredible posts, learning more about Lupus and getting to know you a little better! I hope you had a great weekend and have a good upcoming week!

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    1. It’s very nice to meet you Alyssa! I’m sorry you have multiple sclerosis and I know through this blog we can creat a deeper connection and will be able to help each other overcome obstacles dealing with chronic illness. I can’t wait to create more content and also am excited to read your posts. Have a good week as well 😊💕

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      3. Absolutely! Back when I started my blog in July 2017, I never knew what an impact it would have on my life. It has not only been a great outlet for feelings, but I have been able to get to know many amazing people!

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      4. Exactly! I started this in February of this year and at first I was just using it to write out my frustrations and feelings with living with a chronic illness. But I’ve met so many amazing people through here and I’m so happy there’s people who can relate what I’m going through. None of us are never alone!

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  6. Thank you for such a positive blog and sharing your story about lupus! I was just diagnosed with SLE with neurologic manifestations in Nov 2017, and it’s been a difficult adjustment. My symptoms were and still are debilitating at times, and I have fibromyalgia for the past 2 decades as well. I’m on Cellcept now, so I’m hoping it helps. Steroids and plaquenil didn’t do very much. Since I have neurological involvement, I suffer a lot of headaches, blurred vision, and occasional cognitive impairment…I feel like I can’t find the words I need or forget little things. I never dreamed my life would change so much with chronic illnesses, and so many people don’t understand or think I’m overreacting about my pain since they can’t see it. It’s so nice to have a group of people who understand because they also experience it. Thank you again! Have a great weekend!!

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    1. Cellcept and i did not mix well but i hope it helps you. I am so sorry that you have to go through these challenges, but I’m so grateful I can provide a place where people can relate and vent and connect. Thank you so much for taking the time to read through my blog and I hope I can create content that will continue to inspire, stay strong💕

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  7. I’m sorry the Cellcept didn’t mix well with you; I’ve only been on it about 2 weeks, so I’m adjusting to some side effects that I hope will go away, especially nausea, vomiting, and not being able to sleep. And I’ve had some hand tremors, which I’m not sure is the meds or the cognitive symptoms of lupus. I see my Dr next week, so I’m going to ask how long the Cellcept will last. My immune system has definitely taken a hit since I’ve been constantly sick since fall with one infection after another (caught by my 7 yr old but worsened when I get it; when I had the flu in Feb it turned into pneumonia with a few days in the hospital), so that has been a new experience!

    Again, thank you so much for all the positivity and inspiration! ❤

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    1. Wow well I hope you get well soon and that your journey gets easier! I actually had super bad hand tremors when I was taking cellcept, but I was also on steroids at the time so I’m not sure which medication caused them or if it was even from medication or lupus in general. But definitely keep me updated with what your doctors take is on that!

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